Who is Hailey?

Hailey Fitzgerald was born in Halifax, N.S., in 2005. She was a very normal (other than her incredible beauty!) child, and hit all of her developmental milestones in the typical timeframe. She was a happy, fun and emotional child. Hailey loved spending time with other people, playing soccer, reading books and learning. In 2008, Hailey and her parents moved to Fredericton, N.B., to be surrounded by friends and family. Hailey’s little brother, Chase, was born in 2009.

 
 

How it happened

Around Hailey’s seventh birthday in 2012, her family started to notice some changes in her. Her writing skills were diminishing and she started to lose some control over her motor skills. That summer, Hailey’s family began to worry as it became clear that something was wrong. Hailey played soccer and went to gymnastics throughout the summer, but it was clear that she could not run, or even walk, the way she used to. Her parents took her in for testing with her doctor.

On September 14, 2012 Hailey’s doctor delivered the devastating news that Hailey had Metachromatic Leukodystophy, or MLD. Her doctor said that it was a degenerative, terminal disease that had no cure.

He gave Hailey 3 to 5 years to live.

 
 

Living with MLD

While there are trials going on around the world, to stop or slow down the degeneration, Hailey was too far along in the disease to qualify for any of them.

Hailey’s gross and fine motor skills, along with her cognitive skills, are lessening. She is now unable to walk on her own. While it is difficult for her family and friends to witness these changes, she is still a very happy little girl. She smiles and laughs often, lightening the hearts of those around her.

 
 
 

How we can help

Hailey's Dreams has been set up to help Hailey achieve and experience everything she can dream while she still has time. We want her to have the most fulfilled life she possibly can.

The money raised will also go to help ease the financial burden that will be placed on the family in Hailey's declining years. One of her parents may need to stop working, or they may need to hire a full-time nurse. She now needs a wheelchair and accessibility will only become more of a concern in the coming months. She will need a hospital bed, feeding equipment and other medical devices at home. We hope to raise enough money that Hailey’s family will not need to worry about finances, and be able to focus on their family, Hailey and her needs without any extra worries.