To finish for tonight I want to share with you something that Hailey said when we were cuddling in bed tonight that meant so much to me. She was settling into her bed for the night and she turned to me and said “today we learned about cold blooded animals and warm blooded animals”. This may seem like a non noteworthy statement to most people. But Hailey very much lives in the now. Because of the progression of her disease she very rarely speaks about things that have happened in the past or in the future. So for her to recall an item like this and for her to relay it to me was huge and brought a smile to my face and tears to my eyes. We went on to discuss a few differences that she had learned. It was amazing and it goes to show what a great team she has at school that is obviously making a huge impact on her!