Hailey is an eleven-year-old girl from Fredericton, New Brunswick. She loves dressing up, playing soccer, and reading.
In summer 2012, Hailey was diagnosed with juvenile metachromatic leukodystrophy, an extremely rare genetic condition that affects the white matter of the brain.
Research is minimal due to the rarity of the condition; thus there is no cure or even a viable treatment option for MLD.
Hailey’s condition will gradually worsen, leading to paralysis, blindness, seizures and dementia. She is expected to live with MLD for 3 to 5 years.
The goal of Hailey’s Dreams is to enrich the short time Hailey has left with happiness and great memories.
This begins with enabling her to participate in the activities she loves while she remains physically able...
Followed by helping provide the care she will require in the declining years of her life.
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